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Write about your opinion regarding business research and informed consent.

Ethics and Professionalism in CS
I N F O R M E D C O N S E N T

1

  • Human Subjects Research
  • A scientific investigation that involves
    humans as the test subjects.

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    Benefits and harm balance.

    2

  • Tuskegee Case (1)
  • Done in the period between 1

    9

    3

    2-19

    7

    2 in Macon
    Alabama by the US public health service.

    An observational study to monitor the
    development of untreated Syphilis.

    6

    00 (399 with, 201 without) African-American
    sharecroppers were involved in the study.

    They were only told that they are receiving free
    health-care and hot meals.

    3

  • Tuskegee Case (2)
  • In 19

    4

    7, Penicillin became a standard treatment for Syphilis.
    ◦ Poor subjects were never informed!!!

    A public outcry halted this study in 1972.
    ◦ The harm caused on subjects not being treated outweighs the medical value out of

    this study.
    ◦ More harm than benefit

    4

  • The Tuskegee case?
  • 5

  • Informed Consent
  • Human subjects MUST
    ◦ Be informed about the experiment
    ◦ Consent to the experiment without any

    type of coercion.
    ◦ Have the right to withdraw at any time.

    Researchers shouldn’t (INTENTIONALLY)
    cause any harm to subjects.

    Required by federal law.
    ◦ ONLY for government funded studies!!

    6

  • Institutional Review Board (IRB)
  • It is sometimes hard for subjects to assess the benefits vs harm in an experiment
    they are involved in.
    ◦ Experimenters cannot do that alone!

    Benefits vs harm should be assessed by whom?

    IRBs comprises diverse members
    ◦ Including non-scientists.

    It balances the potential harm on human subjects against benefits to the society.

    Manages any violations of informed consent

    7

  • Informed Consent (Always possible??)
  • 8

  • Business studies
  • Informed consent and IRB review are NOT required if the study is done by
    businesses.

    A/B testing for online companies
    ◦ Group of customers shown version A
    ◦ Other group shown version B
    ◦ Compare

    NOT considered human subjects research!!!!
    ◦ Considered a good business practice.

    9

  • Facebook/Cornell experiment
  • In 20

    12

    , researchers at Facebook and Cornell
    university conducted an experiment to
    manipulate user mood (Emotional Contagion).
    ◦ Published in 20

    14

    ◦ News feed of some Facebook users (700, 000)

    were manipulated
    ◦ Some were shown positive articles
    ◦ Others were shown negative articles

    ◦ Results were really interesting!!
    ◦ Mood is contagious!

    Was it legal? Was it ethical?

    10

    Facebook / Cornell

    Experiment

    11

  • OKCupid
  • case

    Online matching company.
    ◦ Match couple profiles
    ◦ A matching algorithm
    ◦ Compatibility score

    The love is blind day (Suppressed photos)
    ◦ This results in more conversations

    They tinkered with the algorithm
    ◦ They told couples they were compatible

    even if they are not!!!!
    ◦ And vice versa
    ◦ Results were interesting!!!

    12

  • OKCupid case (2)
  • 13

    Experiment

    Compatible Not Compatible

    Truth
    Compatible Good Good

    Not Compatible Good Bad

    OKCupid

    14

    • �Ethics and Professionalism in CS
    • Human Subjects Research
      Tuskegee Case (1)
      Tuskegee Case (2)
      The Tuskegee case?
      Informed Consent
      Institutional Review Board (IRB)
      Informed Consent (Always possible??)
      Business studies
      Facebook/Cornell experiment

    • Facebook / Cornell Experiment
    • OKCupid case
      OKCupid case (2)
      OKCupid

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